Overcoming long term health
problems is never easy, but the rewards can be great. And me/cfs is a rather
mysterious illness with no definitive research, so understanding how best to
live with it is oftentimes pure guesswork. When I first became ill, 13 years
ago, I persevered in going to work, doing my best to meet performance targets. After
only a week my boss told me to go home and recover, as I just couldn't do the job
properly at all. I never did regain normal health even for a single minute;
indeed I became even more ill. And then found partial relief. And then
relapsed! Yes the condition is cyclical, but there always remains an underlying
debilitation similar to the flu. You get used to feeling pretty grotty all the
time, totally exhausted, suffering brain fog, poor concentration and short term
memory loss. Headaches lasting weeks at a time are a nuisance, as is muscle pain
that can occur almost anywhere. A common experience is that the initial onset
occurs as a post viral complaint; others suffer shock, maybe an emotional fright
or for some, chemical exposure. I seem to have a consistently moderate
condition, so though unable to work I can manage to live a partially normal
life. I know of others who become bed-bound without strength to move at all. And
if I completely overdo things I end up housebound with complete exhaustion
myself. Stress is a major ingredient affecting things for me, so I chill out,
and have determined that no problem I face compares with the challenge Jane
faced with terminal cancer. So I refuse to worry about anything. When I
remember not to that is…
Anyway, yesterday was my
attempt at living a normal life and I took my eldest daughter and her two children
to London. To visit the Queen? Nah, I don’t think she was at home. But my photo
was taken in front of Buckingham Palace, where we played the game of wondering
who was behind open windows. But we certainly walked quite a way doing a mini
tour on foot, and maybe my day out was reckless, inviting a serious relapse, but
I don’t think so. So despite a long journey on a very familiar motorway, I had
great fun initiating my family into the rock and rolling delights of the Tube
where almost everyone had phones or even Kindles in their hands. Weird how
life has changed over the past year or two isn't it? So first we visit the
Science Museum, and they were all totally disorientated trying to engage with
the vast collection of exhibits and activities, sufficient to occupy for a
week, let alone a few hours. Eventually we left to begin our walk and
immediately puzzled at the rather unfortunate clothing chosen for school kids playing
rugby on Hyde Park. So glad we live in sensible Derby I'm sure. Then we took
photos of Big Ben on the way to a rather damp and drab Downing Street. A Chinook
helicopter clattered past at very low level as we watched armed police ushering
a crowd of youngsters through the massive gates guarding our Prime Minister’s
home. Theatre land looked splendid as the sun went down and eyes lit up as I mentioned
Leicester Square and it’s red carpet for film premières Of course the whole
walk had really been spent on a search for One Direction, just in case they
were in town! Yeh, all very different from my grandkids’ wonderfully sheltered
upbringing.
I’m pleased to report that
today I feel fine. A few aches from the long walk maybe, but actually my
biggest problem has come from peeling garlic and chopping onions… yes I've been
cooking again, and for sure my fingers are going nowhere near my eyes for a day
or two! So all rather mundane in Dave’s world. And that’s exactly what I want
at the moment. Just a normal life without illness.
Psalm 91:14-16 ‘The Lord says,
“I will rescue those who love me. I will protect those who trust in my name. When
they call on me, I will answer; I will be with them in trouble. I will rescue
and honour them. I will reward them with a long life and give them my salvation.”’
(NLT)