It’s been nice having a relatively less challenging day after yesterday’s excursion. But even so there have been several health professionals either ringing or visiting right through the day and each demands proper attention to help them to do their job in supporting Jane. Continually discussing end-of-life care is quite demanding but she really needs all the skilled support she can get. I’ve even resorted to a spreadsheet to chart Jane’s many prescriptions which seem to cover every eventuality and would otherwise be rather haphazard. Improving quality of life is the goal but that is so difficult… for example last night Jane gave up on using a bed but managed to sleep eventually in her recliner, albeit propped up into a vertical seated position using pillows. The poor girl was absolutely exhausted. Anyway, today the district nurse talked to us about something called a profiling bed with a pressure relieving mattress that they could provide. As I’ve said before they’ll do anything they possibly can to help Jane cope with her symptoms.
Today Jane has been smiling again. I don’t know how she can but she has… and even tried the occasional witty comment. She seems to be continually saying thank you for everything that’s done for her and is truly my hero for how she’s coping without even the slightest hint of complaint. Although stressed particularly physically, but also mentally to the extreme she remains basically at peace and is running her race with a quiet dignity and total determination. But right now enough is enough and we are asking the Lord to either take her home or heal and restore her... today. Life is tortuous at the moment with no real pleasure and no earthly hope of substantial change. Jane’s only hope is in the God of heaven and earth; Jesus Christ is her saviour, redeemer, healer, restorer, provider, comforter and very best friend… closer than the closest brother, sister, husband, daughter, son, mother or whoever. He is her all sufficient one.
Hebrews 12:1-2 ‘Therefore, since we are surrounded by such a huge crowd of witnesses to the life of faith, let us strip off every weight that slows us down, especially the sin that so easily trips us up. And let us run with endurance the race God has set before us. We do this by keeping our eyes on Jesus, the champion who initiates and perfects our faith. Because of the joy awaiting him, he endured the cross, disregarding its shame. Now he is seated in the place of honour beside God’s throne.’ (NLT)
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